It is getting to be...

That scary time of year again. Ok, ok...not scary, but more like hmmmmm what is the doc going to say? I scheduled Kate's cardiologist appointment for the 23rd. Her regular cardiologist isn't on the schedule to come down to the satellite clinic until after January, so she will be seeing another Dr. We could go up to where she was born, but he only does those appointments on Wednesdays, and since Thanksgiving is coming up, he won't be there so......

So she will see another dr. They assure me that he/she will know all about her history prior to coming down. I hope so. I mean, she is a walking testament that surgery works, and she is resilient, and is smart, and bright, and talks and talks, and squeals, and is full of life. But, how is her heart?? Is it really still okay?? We will have an echo done first like always, and then we will get the verdict of what is going on. And hopefully it means that we won't have to go again until next year. She gets winded easily. Like we can't walk far without her trying to catch her breath. Once, we went to a hotel, and walked down the long hallway to get to the stairs, and by the time we got to the stairs, we had to carry her the rest of the way. You forget these things when you have an older child if this is normal, or if it is a side effect of her heart, or her larynx from her chest tube that damaged her vocal cords. I also scheduled her physical with her pediatrician for the 19th. So we will see him before her heart doc. I will ask him about it then, and then see what the heart doc says too.
I know, it seems I continue to stress about her when she seems "fixed"...but I have a hunch I am not alone. I don't know that I will ever really trust that she is 100 percent fixed for the rest of her life. I mean, I hope so! But it lingers in the back of the mind. It does.